RehabifyWhat it is
- Duchenne muscular dystrophy (DMD): signs usually start between ages 2 and 5
- Becker muscular dystrophy: similar to DMD but milder and slower
- Other types, such as limb-girdle and facioscapulohumeral dystrophy, which can start later
As muscles weaken, joints such as the ankles, knees and hips can get tight, the spine can curve, and in later stages the heart and breathing muscles can be affected. Your child's neurologist and other specialists look after these with the rehab team.
Who should see a doctor
Signs to get checked
- A child who falls often, walks on toes or uses hands to push up from the floor
- A child with a diagnosis who needs a stretching programme, splints or equipment
- Tight ankles, pain, or a change in walking or posture
- Planning for school, a wheelchair or home changes
What happens at Rehabify
- 01
History
Diagnosis, medicines, current therapy, daily routine and school.
- 02
Examination
Strength, joint range, posture, spine, walking and timed tasks such as rising from the floor.
- 03
Your plan
Daily stretching, safe activity, night splints, and advice on avoiding over-tiring exercise.
- 04
Equipment
Walking aids, seating and wheelchairs at the right time.
- 05
Team links
A written plan for your child's neurologist, therapists and school, with referral for heart, breathing or spine checks when needed.
The doctor decides the right tests and treatment for your child after examining them.
Before and after your visit
How to prepare
- Bring the diagnosis report, genetic test results and a list of medicines
- Bring splints, shoes and any equipment your child uses
- Note what has changed in the last 6 months, such as falls or stairs
After your visit
You leave with a written plan, a home stretching programme and a review date. You can send questions on WhatsApp between visits.
When to get help urgently
Common questions
Can rehab stop muscular dystrophy?
No. Rehab does not stop the condition, but it can help keep joints flexible, delay tightness, and help your child stay active and independent for longer.
Is exercise safe for my child?
Gentle, regular activity such as swimming and play is usually encouraged. Heavy, straining exercise can harm weak muscles. The doctor will explain what is safe.
Why are night splints used?
They hold the ankles in a stretched position while your child sleeps, which helps slow down tightness of the calf muscles.
When does a child need a wheelchair?
Many children use one for long distances first, while still walking at home. The doctor helps you plan this so your child keeps up at school and with friends.
Do you work with the school?
Yes, with your consent. The doctor can suggest seating, toilet access, rest breaks and safe PE.
Sources
- [1]
DMD Care Considerations Working Group. Diagnosis and management of Duchenne muscular dystrophy (Lancet Neurology, 2018)
- [2]
World Health Organization (WHO). Rehabilitation fact sheet
This page is for general education and does not replace a consultation. The right plan depends on your examination.